Table 4 Experience of preparation for transition among adolescents living with HIV with a low and high level of preparedness for transition to adult care
Experiences in preparation process for transition | Total (n = 223) | Level of preparedness for transitiona | ||
|---|---|---|---|---|
Low (≤7) (n = 104) | High (>7) (n = 119) | p value†| ||
n (%) | n (%) | n (%) | ||
Facility you prefer to receive HIV treatment and care | 0.08 | |||
 Pediatric ART services | 187 (83.9) | 92 (88.5) | 95 (79.8) | |
 Adult ART services | 36 (16.1) | 12 (11.5) | 24 (20.2) | |
Preferred to discuss questions related to health, sexual life, or daily life with | 0.78 | |||
 Health care providers | 50 (22.4) | 21 (20.2) | 29 (24.4) | |
 Counselors/peer educators | 9 (4.0) | 5 (4.8) | 4 (3.4) | |
 Friends | 37 (16.6) | 20 (19.2) | 17 (14.3) | |
 Family | 101 (45.3) | 45 (43.3) | 56 (47.1) | |
 Other | 26 (11.7) | 13 (12.5) | 13 (10.9) | |
Person who you trust the most for your treatment | 0.001 | |||
 Health care providers | 176 (78.9) | 92 (88.5) | 84 (70.6) | |
 Counselors/peer educators | 10 (4.5) | 5 (4.8) | 5 (4.2) | |
 Friends/family | 27 (12.1) | 3 (2.9) | 24 (20.2) | |
 Other | 10 (4.5) | 4 (3.8) | 6 (5.0) | |
Sources of information about health | 0.90 | |||
 ART clinic | 134 (60.1) | 61 (58.7) | 73 (61.3) | |
 NGOs | 17 (7.6) | 8 (7.7) | 9 (7.6) | |
 Family | 51 (22.9) | 26 (25.0) | 25 (21.0) | |
 Other | 21 (9.4) | 9 (8.7) | 12 (10.1) | |
Received counseling on transition to adult services | 0.01 | |||
 No | 157 (70.4) | 82 (78.8) | 75 (63.0) | |
 Yes | 66 (29.6) | 22 (21.2) | 44 (37.0) | |
Person who provided the counseling | 0.43 | |||
 Health providers | 24 (36.9) | 7 (33.3) | 17 (38.6) | |
 Counselors/peer educators | 31 (47.7) | 9 (42.9) | 22 (50.0) | |
 Other | 10 (15.4) | 5 (23.8) | 5 (11.4) | |
Ever completed a transfer form | 0.14 | |||
 No | 217 (97.3) | 103 (99.0) | 114 (95.8) | |
 Yes | 6 (2.7) | 1 (1.0) | 5 (4.2) | |
Ever visited an adult clinic to prepare for transition | 0.03 | |||
 No | 179 (80.3) | 90 (86.5) | 89 (74.8) | |
 Yes | 44 (19.7) | 14 (13.5) | 30 (25.2) | |
Person who took you to visit the adult clinic to prepare for transition | 0.15 | |||
 Counselors/peer educators | 2 (4.7) | 1 (7.7) | 1 (3.4) | |
 Friends/family | 30 (69.8) | 11 (84.6) | 19 (63.3) | |
 Other | 11 (25.5) | 1 (7.7) | 10 (33.3) | |
The visit was helpful for you to cope with the transition | 0.61 | |||
 No | 5 (11.6) | 2 (15.4) | 3 (10.0) | |
 Yes | 38 (88.4) | 11 (84.6) | 27 (90.0) | |
A ‘Case Manager’ has been identified to support you during the transition | <0.001 | |||
 No | 168 (75.3) | 91 (87.5) | 77 (64.7) | |
 Yes | 55 (24.7) | 13 (12.5) | 42 (35.3) | |
Preparedness to manage your treatment going forward | 0.01 | |||
 Very prepared | 29 (13.0) | 8 (7.7) | 21 (17.6) | |
 Somewhat prepared | 168 (75.3) | 81 (77.9) | 87 (73.1) | |
 Somewhat unprepared | 12 (5.4) | 4 (3.8) | 8 (6.7) | |
 Very unprepared | 14 (6.3) | 11 (10.6) | 3 (2.5) | |
Feeling supported during preparation process for the transition to adult care | 0.96 | |||
 Very supported | 11 (14.9) | 2 (11.8) | 9 (15.8) | |
 Somewhat supported | 44 (59.5) | 10 (58.8) | 34 (59.6) | |
 Somewhat unsupported | 7 (9.4) | 2 (11.8) | 5 (8.8) | |
 Very unsupported | 12 (16.2) | 3 (17.6) | 9 (15.8) | |
Satisfaction you with the preparation process for transition in general | <0.001 | |||
 Very satisfied | 16 (7.2) | 2 (1.9) | 14 (11.8) | |
 Somewhat satisfied | 51 (22.9) | 15 (14.4) | 36 (30.3) | |
 Somewhat dissatisfied | 26 (11.7) | 11 (10.6) | 15 (12.6) | |
 Very dissatisfied | 130 (58.3) | 76 (73.1) | 54 (45.4) | |