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Table 3 FGD results extracted from HIV positive individuals works on mothers supporting groups concerning barriers to early HIV/AIDS care, Southern Tigray Zone, April 2014

From: Determinants of late presentation to HIV/AIDS care in Southern Tigray Zone, Northern Ethiopia: an institution based case–control study

Barriers to HIV/AIDS care

HIV/AIDS positive individuals working on Mother Supporting Group

Fear of stigma

“… I was worried that people will talk about me if they hear I tested positive”… Male-32 “When I became aware of my HIV status my challenge was fear of health professionals and seeing other individuals I know while attending the ART clinic”, Female-27.

Fear of losing income source/former job

“People seem supportive towards HIV positives at first, but the pain is that they gradually change their feeling and treat you as ‘too weak’ to accomplish your duty …HIV positives will be shifted to lower status/position”, Male-55

“Although they are HIV positive, numerous commercial sex workers in the town continue their commercial sex work”, Female-27

Use of non-medical treatment

“…then she ate a dried Wild boar’s meat and Wild boar’s bile”, Female-30

“…he told me a very bitter plant called ‘Oure’ or ‘Eret’ is medicine for HIV and he had been drinking it until he ended up dying”, Female-30

“I went to a local traditional healer called ‘TonqualIi’ or magician and spent around 3000 Ethiopian Birr then he told to my wife wash my body using sheep’s blood and dung added together ….”, Male-38

“There was one HIV-positive neighbor with symptoms of diarrhea, she bought drugs from the pharmacy, was relieved of her symptoms for some time and then went to other pharmacy a few days later….”, Female-30

“My husband and were severely diseased and confined to bed for around 6 months. He had been telling that his illness was due to other diseases like malaria, and he has been getting medicines from drug stores”, Female-34

Low families driving force for initiation care

“We should let peoples think for the next generation…If my children are healthy…..”, Male -32 … “My child is negative”, Female-27, “My wife and children are negative”, Males-32, 55

Inadequacy of social support (spouse, friends and religious leaders)

“… I show him my ART drugs that I am taking and he became persuaded to take his treatment too”, Female-55

“I become angry and decided not to take any treatment for 1 year. Later on my friends were taking HIV treatment and they encouraged me to take treatment.” Male-28

“Males say that we are healthy even though we have the HIV and nothing bad is going on us, but, females become ill and suffer from headache and they come to ART clinics saying I tested positive for HIV …”, Female-27

“….later on my wife went to the health center and tested positive after that she encouraged me to be tested …”, Male-38

“…..I then persuaded my husband to be tested for HIV and avoided taking other drugs from outside the treatment center’’, Female-34

“My brother shouts at me, you should be tested and know the cause for your illness today; I will help every expense that follows …..”, Female-35

“…she was severely ill and her family said that they didn’t want to take care of the dead”, Female-27

Inadequate knowledge

“The HIV testing sites that are conducted in the shade in town are always crowded with people being tested, especially males. But they don’t come to care once they have tested positive [F-55] and they can only be accessed after they become diseased, arriving on a stretcher or by ambulance, or when found during house-to-house tracing by volunteer HIV support groups. …”, Female-34